{"id":45153,"date":"2024-10-22T19:00:46","date_gmt":"2024-10-22T12:00:46","guid":{"rendered":"https:\/\/e1ship.com\/?p=45153"},"modified":"2024-10-22T14:32:47","modified_gmt":"2024-10-22T07:32:47","slug":"hoi-thao-khoa-hoc-tiep-can-da-chieu-trong-cham-soc-ly-thuong-bi-bong-nuoc-bam-sinh","status":"publish","type":"post","link":"https:\/\/e1ship.com\/hoi-thao-khoa-hoc-tiep-can-da-chieu-trong-cham-soc-ly-thuong-bi-bong-nuoc-bam-sinh.html","title":{"rendered":"H\u1ed9i th\u1ea3o khoa h\u1ecdc ch\u1ee7 \u0111\u1ec1: Ti\u1ebfp c\u1eadn \u0111a chi\u1ec1u trong ch\u0103m s\u00f3c ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc b\u1ea9m sinh"},"content":{"rendered":"<div id=\"attachment_45154\" style=\"width: 660px\" class=\"wp-caption aligncenter\"><img decoding=\"async\" aria-describedby=\"caption-attachment-45154\" class=\"size-full wp-image-45154\" src=\"https:\/\/e1ship.com\/wp-content\/uploads\/2024\/10\/DSC06416.jpg\" alt=\"\" width=\"650\" height=\"433\" \/><p id=\"caption-attachment-45154\" class=\"wp-caption-text\">Ch\u01b0\u01a1ng tr\u00ecnh di\u1ec5n ra d\u01b0\u1edbi h\u00ecnh th\u1ee9c tr\u1ef1c ti\u1ebfp v\u00e0 tr\u1ef1c tuy\u1ebfn thu h\u00fat \u0111\u00f4ng \u0111\u1ea3o y b\u00e1c s\u0129 tham gia<\/p><\/div>\n<p style=\"text-align: justify;\">B\u1ec7nh ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc &#8211; Epidermolysis bullosa (g\u1ecdi t\u1eaft l\u00e0 EB) l\u00e0 b\u1ec7nh l\u00fd b\u1ea9m sinh c\u00f3 nguy\u00ean nh\u00e2n t\u1eeb r\u1ed1i lo\u1ea1n gen. B\u1ec7nh khi\u1ebfn tr\u1ebb lu\u00f4n ph\u1ea3i ch\u1ed1ng ch\u1ecdi v\u1edbi \u0111au \u0111\u1edbn v\u00ec l\u01a1\u0301p ngoa\u0300i cu\u0300ng cu\u0309a da r\u1ea5t d\u1ec5 bi\u0323 bong kho\u0309i t\u00f4\u0309 ch\u01b0\u0301c b\u00ean d\u01b0\u01a1\u0301i, t\u1ed5n th\u01b0\u01a1ng da lan r\u1ed9ng la\u0300m m\u00e2\u0301t di\u0323ch, protein, d\u1ec5 g\u00e2y nhi\u1ec5m tr\u00f9ng, tr\u01b0\u1eddng h\u1ee3p n\u1eb7ng c\u00f3 th\u1ec3 g\u00e2y t\u1ed5n th\u01b0\u01a1ng ni\u00eam m\u1ea1c mi\u1ec7ng, \u0111\u01b0\u1eddng ti\u00eau h\u00f3a, h\u00f4 h\u1ea5p, ti\u1ebft ni\u1ec7u,\u2026 n\u1ebfu kh\u00f4ng \u0111\u01b0\u1ee3c \u0111i\u1ec1u tr\u1ecb d\u1ee9t \u0111i\u1ec3m v\u00e0 k\u1ecbp th\u1eddi th\u00ec nguy c\u01a1 t\u1eed vong cao do c\u00e1c bi\u1ebfn ch\u1ee9ng.<\/p>\n<p style=\"text-align: justify;\"><img decoding=\"async\" class=\"aligncenter size-full wp-image-45155\" src=\"https:\/\/e1ship.com\/wp-content\/uploads\/2024\/10\/tiep-can-da-chieu-trong-quan-ly-benh-ly-thuong-bi-bong-nuoc-bam-sinh-1.jpg\" alt=\"\" width=\"650\" height=\"367\" \/><\/p>\n<p style=\"text-align: justify;\">\u201c<em>H\u1ea7u h\u1ebft tr\u1ebb m\u1eafc EB, vi\u1ec7c ch\u0103m s\u00f3c v\u1ebft th\u01b0\u01a1ng l\u00e0 m\u1ed9t vi\u1ec7c l\u00e0m v\u00f4 c\u00f9ng quan tr\u1ecdng gi\u00fap tr\u1ebb kh\u00f4ng b\u1ecb nhi\u1ec5m tr\u00f9ng to\u00e0n th\u00e2n. T\u00f4i hy v\u1ecdng r\u1eb1ng, h\u1ed9i th\u1ea3o s\u1ebd l\u00e0 c\u01a1 h\u1ed9i \u0111\u1ec3 c\u00e1c y b\u00e1c s\u0129 c\u00f9ng nhau th\u1ea3o lu\u1eadn, chia s\u1ebb c\u00e1c ti\u1ebfn b\u1ed9, h\u01b0\u1edbng \u0111i m\u1edbi trong vi\u1ec7c ch\u0103m s\u00f3c v\u00e0 \u0111i\u1ec1u tr\u1ecb cho b\u1ec7nh nhi m\u1eafc ph\u1ea3i c\u0103n b\u1ec7nh hi\u1ebfm g\u1eb7p n\u00e0y, qua \u0111\u00f3 gi\u00fap n\u00e2ng cao ch\u1ea5t l\u01b0\u1ee3ng s\u1ed1ng cho tr\u1ebb<\/em>\u201d. &#8211; PGS.TS Khu Th\u1ecb Kh\u00e1nh Dung, Ph\u00f3 Ch\u1ee7 t\u1ecbch H\u1ed9i Nhi khoa Vi\u1ec7t Nam, Chi H\u1ed9i tr\u01b0\u1edfng Chi H\u1ed9i Chu sinh v\u00e0 S\u01a1 sinh Vi\u1ec7t Nam, chia s\u1ebb.<\/p>\n<div id=\"attachment_45156\" style=\"width: 660px\" class=\"wp-caption aligncenter\"><img decoding=\"async\" aria-describedby=\"caption-attachment-45156\" class=\"wp-image-45156 size-full\" src=\"https:\/\/e1ship.com\/wp-content\/uploads\/2024\/10\/DSC06580.jpg\" alt=\"\" width=\"650\" height=\"650\" \/><p id=\"caption-attachment-45156\" class=\"wp-caption-text\">PGS.TS Khu Th\u1ecb Kh\u00e1nh Dung &#8211; Ch\u1ee7 t\u1ecda chia s\u1ebb t\u1ea1i ch\u01b0\u01a1ng tr\u00ecnh h\u1ed9i th\u1ea3o<\/p><\/div>\n<p style=\"text-align: justify;\">T\u1ea1i h\u1ed9i th\u1ea3o, c\u00e1c \u0111\u1ea1i bi\u1ec3u tham d\u1ef1 \u0111\u00e3 \u0111\u01b0\u1ee3c Mr. Serge Bohbot\u00a0 &#8211; Gi\u00e1m \u0111\u1ed1c Y khoa To\u00e0n c\u1ea7u c\u1ee7a Urgo Medical chia s\u1ebb v\u1ec1 Urgo Medical v\u00e0 h\u00e0nh tr\u00ecnh to\u00e0n c\u1ea7u trong vi\u1ec7c h\u1ed7 tr\u1ee3 ng\u01b0\u1eddi b\u1ec7nh ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc b\u1ea9m sinh. ThS.BS Tr\u01b0\u01a1ng L\u00ea V\u00e2n Ng\u1ecdc &#8211; Tr\u01b0\u1edfng ph\u00f2ng Nghi\u1ec7p v\u1ee5 Y v\u00e0 B\u1ea3o v\u1ec7 s\u1ee9c kho\u1ebb c\u00e1n b\u1ed9, C\u1ee5c Qu\u1ea3n l\u00fd Kh\u00e1m &#8211; Ch\u1eefa b\u1ec7nh, B\u1ed9 Y t\u1ebf c\u0169ng \u0111\u00e3 tr\u00ecnh b\u00e0y t\u1ed5ng quan v\u1ec1 ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc, d\u1ecbch t\u1ec5 h\u1ecdc v\u00e0 ch\u00ednh s\u00e1ch h\u1ed7 tr\u1ee3 t\u1ea1i Vi\u1ec7t Nam. \u0110\u1ed3ng th\u1eddi, BSCKII Nguy\u1ec5n Quang Minh &#8211; Ph\u00f3 Tr\u01b0\u1edfng khoa Nghi\u00ean c\u1ee9u v\u00e0 \u1ee9ng d\u1ee5ng c\u00f4ng ngh\u1ec7 t\u1ebf b\u00e0o g\u1ed1c &#8211; B\u1ec7nh vi\u1ec7n Da li\u1ec5u Trung \u01b0\u01a1ng \u0111\u00e3 cung c\u1ea5p c\u00e1c ki\u1ebfn th\u1ee9c t\u1ed5ng quan v\u1ec1 c\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc b\u1ea9m sinh, vi\u1ec7c ti\u1ebfp c\u1eadn \u0111i\u1ec1u tr\u1ecb t\u1eeb c\u01a1 ch\u1ebf b\u1ec7nh sinh, hi\u1ec7n t\u1ea1i v\u00e0 t\u01b0\u01a1ng lai. Th\u1ef1c tr\u1ea1ng \u0111i\u1ec1u tr\u1ecb ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc t\u1ea1i \u0110\u01a1n v\u1ecb B\u1ecfng &#8211; B\u1ec7nh vi\u1ec7n Nhi Trung \u01b0\u01a1ng c\u0169ng \u0111\u00e3 \u0111\u01b0\u1ee3c tr\u00ecnh b\u00e0y chi ti\u1ebft b\u1edfi BSCKII Ph\u00f9ng C\u00f4ng S\u00e1ng &#8211; \u00a0Ph\u00f3 Tr\u01b0\u1edfng khoa Ch\u1ec9nh h\u00ecnh, Ph\u1ee5 tr\u00e1ch \u0111\u01a1n v\u1ecb B\u1ecfng &#8211; B\u1ec7nh vi\u1ec7n Nhi Trung \u01b0\u01a1ng.<\/p>\n<p style=\"text-align: justify;\">Theo \u0111\u00f3, \u0110\u01a1n v\u1ecb b\u1ecfng &#8211; B\u1ec7nh vi\u1ec7n Nhi Trung \u01b0\u01a1ng th\u00e0nh l\u1eadp t\u1eeb n\u0103m 2022, k\u1ebf th\u1eeba v\u00e0 ti\u1ebfp t\u1ee5c \u0111i\u1ec1u tr\u1ecb b\u1ec7nh nhi ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc b\u1ea9m sinh, \u0111\u1ebfn nay, \u0111\u01a1n v\u1ecb \u0111\u00e3 v\u00e0 \u0111ang ch\u0103m s\u00f3c cho 17 b\u1ec7nh nhi m\u1eafc EB. Vi\u1ec7c \u0111i\u1ec1u tr\u1ecb ch\u1ee7 y\u1ebfu l\u00e0 thay b\u0103ng s\u1eed d\u1ee5ng c\u00e1c v\u1eadt li\u1ec7u b\u0103ng g\u1ea1c ti\u00ean ti\u1ebfn \u0111\u1ec3 \u0111i\u1ec1u tr\u1ecb t\u00ecnh tr\u1ea1ng b\u1ecdng n\u01b0\u1edbc v\u00e0 gi\u1ea3m thi\u1ec3u t\u1ed1i \u0111a nguy c\u01a1 nhi\u1ec5m tr\u00f9ng. Sau qu\u00e1 tr\u00ecnh \u0111i\u1ec1u tr\u1ecb tr\u1ebb ra vi\u1ec7n trong t\u00ecnh tr\u1ea1ng li\u1ec1n th\u01b0\u01a1ng t\u1ed1t, kh\u00f4ng b\u1ecb nhi\u1ec5m tr\u00f9ng, v\u00f9ng t\u1ed5n th\u01b0\u01a1ng da \u0111\u00e3 kh\u1ecfi.<\/p>\n<div id=\"attachment_45157\" style=\"width: 660px\" class=\"wp-caption aligncenter\"><img decoding=\"async\" aria-describedby=\"caption-attachment-45157\" class=\"size-full wp-image-45157\" src=\"https:\/\/e1ship.com\/wp-content\/uploads\/2024\/10\/DSC05050.jpg\" alt=\"\" width=\"650\" height=\"650\" \/><p id=\"caption-attachment-45157\" class=\"wp-caption-text\">C\u00e1c chuy\u00ean gia chia s\u1ebb nhi\u1ec1u ki\u1ebfn th\u1ee9c v\u00e0 h\u01b0\u1edbng \u0111i m\u1edbi trong vi\u1ec7c ch\u0103m s\u00f3c v\u00e0 \u0111i\u1ec1u tr\u1ecb cho tr\u1ebb m\u1eafc ly th\u01b0\u1ee3ng b\u00ec b\u1ecfng n\u01b0\u1edbc b\u1ea9m sinh<\/p><\/div>\n<p style=\"text-align: justify;\">C\u0169ng t\u1ea1i ch\u01b0\u01a1ng tr\u00ecnh, B\u00e0 Cao H\u01b0\u01a1ng Giang &#8211; Tr\u01b0\u1edfng ban ch\u1ee7 nhi\u1ec7m Nh\u00f3m t\u1eeb thi\u1ec7n Ni\u1ec1m tin, c\u0169ng \u0111\u00e3 chia s\u1ebb v\u1ec1 qu\u00e1 tr\u00ecnh \u0111\u1ed3ng h\u00e0nh v\u00e0 h\u1ed7 tr\u1ee3 cho tr\u1ebb ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc t\u1ea1i Vi\u1ec7t Nam.<\/p>\n<div id=\"attachment_45158\" style=\"width: 660px\" class=\"wp-caption aligncenter\"><img decoding=\"async\" aria-describedby=\"caption-attachment-45158\" class=\"size-full wp-image-45158\" src=\"https:\/\/e1ship.com\/wp-content\/uploads\/2024\/10\/DSC06785.jpg\" alt=\"\" width=\"650\" height=\"433\" \/><p id=\"caption-attachment-45158\" class=\"wp-caption-text\">B\u00e0 Cao H\u01b0\u01a1ng Giang &#8211; Tr\u01b0\u1edfng ban ch\u1ee7 nhi\u1ec7m Nh\u00f3m t\u1eeb thi\u1ec7n Ni\u1ec1m Tin chia s\u1ebb t\u1ea1i ch\u01b0\u01a1ng tr\u00ecnh<\/p><\/div>\n<p style=\"text-align: justify;\">\u0110\u1eb7c bi\u1ec7t, ch\u01b0\u01a1ng tr\u00ecnh h\u1ed9i th\u1ea3o l\u1ea7n n\u00e0y c\u00f2n c\u00f3 s\u1ef1 tham gia c\u1ee7a gia \u0111\u00ecnh b\u00e9 L.H.A (6 tu\u1ed5i) \u2013 m\u1ed9t trong nh\u1eefng chi\u1ebfn binh nh\u00ed \u0111\u00e3 v\u00e0 \u0111ang ki\u00ean c\u01b0\u1eddng chi\u1ebfn \u0111\u1ea5u v\u1edbi c\u0103n b\u1ec7nh ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc.<\/p>\n<div id=\"attachment_45159\" style=\"width: 660px\" class=\"wp-caption aligncenter\"><img decoding=\"async\" aria-describedby=\"caption-attachment-45159\" class=\"size-full wp-image-45159\" src=\"https:\/\/e1ship.com\/wp-content\/uploads\/2024\/10\/DSC06834.jpg\" alt=\"\" width=\"650\" height=\"650\" \/><p id=\"caption-attachment-45159\" class=\"wp-caption-text\">Mr Serge Bohbot &#8211; \u0110\u1ea1i di\u1ec7n Urgo Medical trao t\u1eb7ng ph\u1ea7n qu\u00e0 \u0111\u1eb7c bi\u1ec7t \u2013 nh\u1eefng mi\u1ebfng g\u1ea1c UrgoTul \u2013 \u0111\u1ebfn gia \u0111\u00ecnh b\u00e9 L.H.A<\/p><\/div>\n<p style=\"text-align: justify;\">Hy v\u1ecdng nh\u1eefng ki\u1ebfn th\u1ee9c v\u00e0 kinh nghi\u1ec7m \u0111\u01b0\u1ee3c chia s\u1ebb t\u1ea1i h\u1ed9i ngh\u1ecb s\u1ebd m\u1edf ra nh\u1eefng h\u01b0\u1edbng \u0111i m\u1edbi, mang l\u1ea1i hy v\u1ecdng cho c\u00e1c b\u1ec7nh nh\u00e2n m\u1eafc c\u0103n b\u1ec7nh ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc.<\/p>\n<p style=\"text-align: right;\"><strong>Ph\u00f2ng Th\u00f4ng tin \u0111i\u1ec7n t\u1eed &#8211; Vi\u1ec7n \u0110T&amp;NCSKTE<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>B\u1ec7nh ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc (EB) l\u00e0 m\u1ed9t b\u1ec7nh l\u00fd di truy\u1ec1n hi\u1ebfm g\u1eb7p, g\u00e2y ra nh\u1eefng t\u1ed5n th\u01b0\u01a1ng c\u1ea3 v\u1ec1 th\u1ec3 x\u00e1c v\u00e0 tinh th\u1ea7n cho tr\u1ebb. V\u1edbi mong mu\u1ed1n n\u00e2ng cao ch\u1ea5t l\u01b0\u1ee3ng ch\u0103m s\u00f3c v\u1ebft th\u01b0\u01a1ng ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc, t\u1ea1o ni\u1ec1m tin cho b\u1ec7nh nhi v\u00e0 gia \u0111\u00ecnh c\u00f3 tr\u1ebb m\u1eafc b\u1ec7nh, v\u1eeba qua, B\u1ec7nh vi\u1ec7n Nhi Trung \u01b0\u01a1ng \u0111\u00e3 ph\u1ed1i h\u1ee3p v\u1edbi Urgo Medical t\u1ed5 ch\u1ee9c h\u1ed9i th\u1ea3o \u201cTi\u1ebfp c\u1eadn \u0111a chi\u1ec1u trong ch\u0103m s\u00f3c ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc b\u1ea9m sinh\u201d. Ch\u01b0\u01a1ng tr\u00ecnh thu h\u00fat s\u1ef1 tham gia c\u1ee7a c\u00e1c chuy\u00ean gia \u0111\u1ea7u ng\u00e0nh v\u00e0 \u0111\u1ed9i ng\u0169 y b\u00e1c s\u0129 trong l\u0129nh v\u1ef1c ch\u0103m s\u00f3c v\u00e0 \u0111i\u1ec1u tr\u1ecb b\u1ec7nh ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc b\u1ea9m sinh.<\/p>\n","protected":false},"author":2,"featured_media":45160,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[613],"tags":[654],"class_list":["post-45153","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dao-tao-nghien-cuu-khoa-hoc-chi-dao-tuyen","tag-ly-thuong-bi-bong-nuoc-bam-sinh"],"yoast_head":"\n<title>H\u1ed9i th\u1ea3o khoa h\u1ecdc ch\u1ee7 \u0111\u1ec1: Ti\u1ebfp c\u1eadn \u0111a chi\u1ec1u trong ch\u0103m s\u00f3c ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc b\u1ea9m sinh<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/e1ship.com\/hoi-thao-khoa-hoc-tiep-can-da-chieu-trong-cham-soc-ly-thuong-bi-bong-nuoc-bam-sinh.html\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"H\u1ed9i th\u1ea3o khoa h\u1ecdc ch\u1ee7 \u0111\u1ec1: Ti\u1ebfp c\u1eadn \u0111a chi\u1ec1u trong ch\u0103m s\u00f3c ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc b\u1ea9m sinh\" \/>\n<meta property=\"og:description\" content=\"B\u1ec7nh ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc (EB) l\u00e0 m\u1ed9t b\u1ec7nh l\u00fd di truy\u1ec1n hi\u1ebfm g\u1eb7p, g\u00e2y ra nh\u1eefng t\u1ed5n th\u01b0\u01a1ng c\u1ea3 v\u1ec1 th\u1ec3 x\u00e1c v\u00e0 tinh th\u1ea7n cho tr\u1ebb. V\u1edbi mong mu\u1ed1n n\u00e2ng cao ch\u1ea5t l\u01b0\u1ee3ng ch\u0103m s\u00f3c v\u1ebft th\u01b0\u01a1ng ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc, t\u1ea1o ni\u1ec1m tin cho b\u1ec7nh nhi v\u00e0 gia \u0111\u00ecnh c\u00f3 tr\u1ebb m\u1eafc b\u1ec7nh, v\u1eeba qua, B\u1ec7nh vi\u1ec7n Nhi Trung \u01b0\u01a1ng \u0111\u00e3 ph\u1ed1i h\u1ee3p v\u1edbi Urgo Medical t\u1ed5 ch\u1ee9c h\u1ed9i th\u1ea3o \u201cTi\u1ebfp c\u1eadn \u0111a chi\u1ec1u trong ch\u0103m s\u00f3c ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc b\u1ea9m sinh\u201d. 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